Journal of Epidemiology and Global Health

Volume 10, Issue 2, June 2020, Pages 168 - 177

Care-Related Quality of Life of Caregivers of Beta-Thalassemia Major Children: An Epidemiological Study in Eastern India

Authors
Bijit Biswas1, *, Narendra Nath Naskar2, Keya Basu3, Aparajita Dasgupta4, Rivu Basu5, Bobby Paul4
1Department of Community and Family Medicine, All India Institute of Medical Sciences, Patna, India
2Department of Public Health Administration, All India Institute of Hygiene and Public Health, Kolkata, India
3Department of Pathology, Calcutta National Medical College and Hospital, Kolkata, India
4Department of Preventive and Social Medicine, All India Institute of Hygiene and Public Health, Kolkata, India
5Department of Community Medicine, R.G. Kar Medical College and Hospital, Kolkata, India
*Corresponding author. Email: drbijitbiswas@gmail.com
Corresponding Author
Bijit Biswas
Received 5 August 2019, Accepted 21 December 2019, Available Online 11 February 2020.
DOI
10.2991/jegh.k.200102.003How to use a DOI?
Keywords
Thalassemia; caregivers; quality of life; education; knowledge; social discrimination
Abstract

Caregivers are the persons who provide care at the time of distress or illness. They face many stress and strain to provide the best possible medical care for their children. There are very few studies that explored the care-related quality of life (CarerQoL) of the caregivers of thalassemic children and its correlates. With this background, the current study was designed to explore the CarerQoL of the caregivers of β-Thalassemia Major (β-TM) children and its various correlates. It was a cross-sectional observational study conducted among caregivers of β-TM children attending a tertiary care health facility of Eastern India in between May 2016 and April 2017 with a structured schedule. The median CarerQoL score was found to be 5 with an interquartile range of 4–7 (range: 11). In the final multivariable logistic regression model, care receivers’ (thalassemic children) age [adjusted odds ratio (AOR): 2.2 (1.2–4.2)], spleen status [AOR: 4.1 (2.0–8.7)], blood transfusion frequency [AOR: 2.1 (1.1–3.9)], and quality of life (QoL) [AOR: 3.0 (1.6–5.5)] and caregivers’ educational level [AOR: 2.3 (1.2–4.1)], perceived social discrimination [AOR: 2.3 (1.3–4.1)], debt [AOR: 2.3 (1.2–4.3)], nongovernmental organization assistance [AOR: 2.0 (1.0–4.0)], and wage loss due to seeking treatment [AOR: 1.9 (1.1–3.4)] were significant predictors of CarerQoL of the study participants adjusted with their age, sex, working status, per-capita monthly income, knowledge level related to the disease, and care receivers’ comorbidity status. To conclude, CarerQoL of the study participants were significantly associated with QoL of their wards. Other significant associates of CarerQoL were caregivers’ education level, financial profile, patients’ age, and their clinico-therapeutic profile.

Copyright
© 2020 Atlantis Press International B.V.
Open Access
This is an open access article distributed under the CC BY-NC 4.0 license (http://creativecommons.org/licenses/by-nc/4.0/).

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Journal
Journal of Epidemiology and Global Health
Volume-Issue
10 - 2
Pages
168 - 177
Publication Date
2020/02/11
ISSN (Online)
2210-6014
ISSN (Print)
2210-6006
DOI
10.2991/jegh.k.200102.003How to use a DOI?
Copyright
© 2020 Atlantis Press International B.V.
Open Access
This is an open access article distributed under the CC BY-NC 4.0 license (http://creativecommons.org/licenses/by-nc/4.0/).

Cite this article

TY  - JOUR
AU  - Bijit Biswas
AU  - Narendra Nath Naskar
AU  - Keya Basu
AU  - Aparajita Dasgupta
AU  - Rivu Basu
AU  - Bobby Paul
PY  - 2020
DA  - 2020/02/11
TI  - Care-Related Quality of Life of Caregivers of Beta-Thalassemia Major Children: An Epidemiological Study in Eastern India
JO  - Journal of Epidemiology and Global Health
SP  - 168
EP  - 177
VL  - 10
IS  - 2
SN  - 2210-6014
UR  - https://doi.org/10.2991/jegh.k.200102.003
DO  - 10.2991/jegh.k.200102.003
ID  - Biswas2020
ER  -